Waiting Game

It is a little after midnight and I am just getting to the computer. We did a lot of moving today and we are all very tired.

It looks like they will do the Tracheotomy on Monday. They did another scope today and found that the Botox did work, just not well enough. Blake is getting pretty irritable and is having to work quite hard to breath. His hands are covered so he can’t pull out his feeding tube, but that means he can’t use them to play with his toys etc. I guess that there is no reason that we can’t keep hoping and praying that things change for the better by Monday.

I haven’t looked at the comments yet, but thank you for them. I am sure that Chad and Becky will enjoy reading them.